Today Was a Bad Day

I cried today because I couldn’t eat pasta.


 

I went to an electro cardiologist this morning because my heart rate has been pounding through the roof upon standing, I battle vertigo multiple times a week, and I am so lightheaded that I can’t remain standing for longer than one minute without risking losing consciousness. feel like im going to pass out meme.gifMy cardiologist believes I have POTS (Postural Orthostatic Tachycardia Syndrome). The diagnosis criteria requires a patient’s heart rate to increase 30 beats per minute upon standing from a resting position, or to exceed 120 beats per minute upon standing. My resting heart rate is typically in the low 60’s. When I stand, my heart rate immediately jumps to 130 bpm. It jumps 70 beats per minute, more thanΒ the minimum diagnosis criteria of 30 bpm, sometimes even jumping 100 bpm.

Regardless of this obvious information that can be easily interpreted using a pulse oximeter on my finger, my electro cardiologist requires a tilt table test (my second one) to formally issue a diagnosis. eye roll gif.gifA tilt table test is where they strap you to a table that, you guessed it, tilts you into different positions and monitors your heart rate and consciousness.

In my personal life, for those who have been following, I have applied to a teacher preparation program in the same state where my boyfriend is stationed for the military. In order to receive admission to the program that starts today, I needed to mail my college transcript and the application form to the program’s address. Well. The mail got lost along the way, even though I paid extra for certified mail and tracking, and now the deadline has passed and the program has none of my information. After several phone calls, I managed to fax and email my information to the program director, to then begin filling out a background check. The background check could not be completed until all of my application materials could be accounted for (note, which are still missing). Due to the time crunch and postal error, the director is giving me somewhat of an extension. But now, something is held up in the background check process and it has simply halted its way towards completion.Β annoyed gif.gif

I have also begun a new diet in order to rid myself of Nonalcoholic Fatty Liver Disease. I have cut out carbs, starches, sugars, and processed foods.Β These food groups and ingredients are accumulating in my liver, causing fibrosis (early but reversible scarring). If I can clear my body of ingesting any more of them, then my liver can eventually regenerate that tissue. Side note, however, my favorite foods are pasta, potatoes, and anything in the cookie/brownie/cake/cupcake family (it is no longer a surprise where that fatty liver came from…). I was literally raised alternating eating between potatoes and pasta.Β eating pasta gif.gif


 

So today, I came home and I cried because I couldn’t eat pasta. I cried because I had to sleep all day, felt a persistent stabbing headache, andΒ the room was spinning from 7:30 am untilΒ now, as I lie in bed trying to fall asleep, all because I was asked to stand for two minutes during my morning appointment. I cried because the only time I could schedule my tilt table testΒ was during the exact time of my hepatologist appointment that I booked a month ago and the next opening is about another month out. I cried because even if I am diagnosed with POTS, there is no cure, nor even a treatment plan. I cried because I don’t know if I am moving in with my wonderful boyfriend in 29 days like my phone countdown shows, or if I’ve been denied that opportunity because bad luck keeps tossing curve balls my way. I cried because even if all my materials are successfully received and I am admitted to the teacher preparation program, there is a strong chance I may not be able to even complete the classroomΒ shadowing hours because I can’t stand up for more than a minute. I cried, because all I wanted after today, was a nice big bowl of pasta in all of its buttery goodness.

I cried because today was a bad day.

I mostly only have good days, with bad days sprinkled in. But that makes the bad ones manageable, because they even out. But when every aspect of your life – diet, health, and career – are teetering on such thin lines that seem to all snapΒ at the same time, you can’t help but feel the pressure overwhelm you. There are times in our journey when our happy faces give way to the stress and anxiety we battle with everyday. Usually we can keep it controlled and continue on with our lives with as little venting and negativity as possible. But we are human, with pent up emotions, and they need to be released sometimes.

I thought tonight about how relievingΒ it would be for something to go right. Just something silly and little in my daily life to happen smoothly. No plans are cancelled last minute, no fatigue hinders my day’s goals, the object in motion simply stays in motion. I know things can be a lot worse, and one of my favorite quotations reminds that it is a bad day, not a bad life.Β I am in no way denying my appreciation for all of the other wonderful things in my life. But I am saying that it’d sure be nice to catch a break, or maybe even just a bowl of pasta.Β not a bad life pic.jpg

10 thoughts on “Today Was a Bad Day

  1. That sounds like a terrible day with everything going wrong at the same time? I’m so sorry to hear about the health issues. It sounds difficult but there are alternatives to carbs. I have a tool that makes zucchini and squash into long strips and I cook them and they have a spaghetti texture I have really come to like. Is the POTS always this bad or worse at certain times? Is it always this way when you stand up you should be on some type of disability benefit instead of working until they can medicate you properly. You can’t teach if you are at risk of passing out. Please keep me informed. πŸ™‚

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    1. I actually have tried the zucchini! I got angry and threw it out because it just wasn’t the same as pasta…lol. So once I get over my high maintenance palate I will try it again.
      The POTS unfortunately is always this bad. Everyone manifests it differently. I don’t have it that bad considering many other people who are in wheelchairs from it. I can apply for disability, but there isn’t much research on POTS so courts are reluctant to reward disability (1 out of 4 POTS patients are on disability, the rest are all filing to be haha).

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  2. Sorry it was a bad day and sorry you’re going through all this. Hopefully they can get the POTS diagnosis complete so you can at least start some form of treatment to maybe help ease some of your symptoms. And don’t feel bad about crying over pasta – just reading about it made me want to cry too lol. Pasta with butter, salt, and parmigiano cheese used to be one of my “safe foods” but unfortunately those days are gone. Definately worth a little grieving time.

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    1. KT,, Believe me ,, I know exactly what PASTA MEANS TO U,,,, That is all I have fed U, your whole life ,,,, Knowing that ,,, I still KNOW that U WILL PICK YOURSELF UP BY THE BOOT
      STRAPES & HITCH IT TO YOUR WAGON & KEEP ON , KEEPING ON,,,,
      KATIE,, U R 1 TOUGH LITTLE COOKIE & I KNOW U CAN DO THIS….That spaghetti squash sounds terrific,,,,, People say that it tastes just like the real stuff,,,,, & U know that
      Everything will out in the long run,,,, SO HAVE A REAL GOOD CRY FOR YOURSELF &
      THEN U WILL FEEL A LITTLE BETTER,,,,, REMEMBER U R A MADISON WOMAN &
      JUST “” HEAR U ROAR “”. LUV U , SWEETHEART. GRAMCRACKER

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    2. PASTA WITH BUTTER AND SALT is my absolute favorite. Thank you – you get it! It is my safe food too, I only order off the kids’ menu at restaurants…I will definitely write a mourning blog post for sugars and carbs.

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  3. I didn’t “Like” this post because I liked what is happening to you, but because it is so well written and authentic and describes so precisely the kind of “shit” us multiple chronic AI condition people have to deal with day after day. Sometimes, we just want a break or a bowl of buttery pasta. πŸ˜‰ Take care. Good luck with the tilt table! (Just had one recently. Argh.)

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    1. Thank you so much for your kind words. I really appreciate your support on my blog! I try to embody our struggles in a humorous and relatable way πŸ™‚

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